Evaluating a shared decision-making intervention regarding dialysis modality: development and validationof self-assessment items for patients with chronic kidney disease
- Author:
Soojin KIM
1
;
Jung Tak PARK
;
Sung Joon SHIN
;
Jae Hyun CHANG
;
Kyung Don YOO
;
Jung Pyo LEE
;
Dong-Ryeol RYU
;
Soontae AN
;
Sejoong KIM
Author Information
- Publication Type:Original Article
- From:Kidney Research and Clinical Practice 2022;41(2):175-187
- CountryRepublic of Korea
- Language:English
- Abstract: Shared decision-making is a two-way symmetrical communication process in which clinicians and patients work together to achieve the best outcome. This study aimed to develop self-assessment items as a decision aid for choosing a dialysis modality in patients with chronic kidney disease (CKD) and to assess the construct validity of the newly developed items. Methods: Five focus group interviews were performed to extract specific self-assessment items regarding patient values in choosing a dialysis modality. After survey items were refined, a survey of 330 patients, consisting of 152 hemodialysis (HD) and 178 peritoneal dialysis (PD) patients, was performed to validate the self-assessment items. Results: The self-assessment for the decision aid was refined to 35 items. The structure of the final items appeared to have three dimensions of factors; health, lifestyle, and dialysis environment. The health factor consisted of 12 subscales (α = 0.724), the lifestyle factor contained 11 subscales (α = 0.624), and the dialysis environment factor was represented by 12 subscales (α = 0.694). A structural equation model analysis showed that the relationship between the decision aid factors (health, lifestyle, and dialysis environment), patients’ CKD perception, and cognition of shared decision-making differed between HD patients and PD patients. Conclusion: We developed and validated self-assessment items as part of a decision aid to help patients with CKD. This attempt may assist CKD patients in making informed and shared decisions closely aligned with their values when considering dialysis modality.