Quality of Life and It's Influencing Factors for Caregivers of Children with Disabilities
10.3969/j.issn.1006-9771.2021.10.004
- VernacularTitle:残疾儿童照护者生活质量及其影响因素分析
- Author:
Yu-qian CHEN
1
;
Mei SUN
1
;
Jun LÜ
1
;
Fu-bing QIU
2
;
Fen QIU
3
;
An-qiao LI
4
;
Cong XIA
1
;
Hong-ying ZHENG
1
Author Information
1. School of Public Health, Fudan University, Shanghai 200032, China
2. Research Center of Physical Education, Sport and Health of Department of Physical Education, Shenzhen University, Shenzhen, Guangdong 518060, China
3. Institute for Sport Science/Department of Physical Education of Wuhan University of Technology, Wuhan, Hubei 430070, China
4. China Academy of ICF, Weifang, Shandong 261000, China
- Publication Type:Research Article
- Keywords:
children with disabilities;
caregivers;
quality of life;
influencing factors
- From:
Chinese Journal of Rehabilitation Theory and Practice
2021;27(10):1144-1151
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To explore the quality of life of caregivers of children with disabilities and its influencing factors. Methods:From December, 2019 to January, 2020, and August to September, 2020, a total of 496 family caregivers of children with disabilities were surveyed in Shanghai. The 12-item Short-form Health Survey (SF-12) was used to measure the quality of life of 496 caregivers, and multiple linear regression was performed to analyze the related factors. Results:The score of physical component summary (PCS) of caregivers was (51.67±8.11), and the score of mental component summary (MCS) was (42.10±12.66). The scores of PCS were lower in caregivers with children aged 6 to 18 years (B = -1.783, 95%CI -3.279 to -0.287, P = 0.020), children with emotional instability (B = 2.719, 95%CI 1.254 to 4.184, P < 0.001), female caregivers (B = -3.765, 95%CI -6.578 to -0.953, P = 0.009), and caregivers who were relatively dissatisfied with the policy (B = 1.973, 95%CI 0.367 to 3.578, P = 0.016); and were higher in caregivers with children with speech disabilities (B = 3.463, 95%CI 0.053 to 6.873, P = 0.047). The types of disabilities of children (Bhearing = 9.465, 95%CI 5.107 to 13.823, P < 0.001; Bundetermined = 5.999, 95%CI 1.558 to 10.441, P = 0.008), playmates of children (B = 2.626, 95%CI 0.352 to 4.901, P = 0.024), education level of caregivers (Bhigh middle school = -4.701, 95%CI -8.028 to -1.374, P = 0.006; Bhigh school = -3.610, 95%CI -6.604 to -0.615, P = 0.018), family size (B = 2.616, 95%CI 0.479 to 4.753, P = 0.017) and per capita monthly income (B < 5000 Yuan= -6.572, 95%CI -9.136 to -4.008, P < 0.001; B5000 to < 10000 Yuan = -4.932, 95%CI -7.544 to -2.319, P < 0.001) were associated with the scores of MCS. Conclusion:The quality of life, especially the mental health, of caregivers of children with disabilities is poor. The influencing factors cover multiple dimensions such as caregivers, children, family and social environment.