Development and Application of Advance Care Planning Workbooks to Facilitate Communication with Children and Adolescent Patients: A Pilot Test
10.14475/kjhpc.2020.23.4.212
- Author:
Yi Ji MOON
1
;
Jung LEE
;
In Sil CHOO
;
Sung Han KANG
;
Cho Hee KIM
;
In Gyu SONG
;
Min Sun KIM
Author Information
1. Department of Social Welfare, Sungkyunkwan University, Seoul, Korea
- Publication Type:Original Article
- From:Korean Journal of Hospice and Palliative Care
2020;23(4):212-227
- CountryRepublic of Korea
- Language:English
-
Abstract:
Purpose:This study presents the process of designing workbooks for advance care planning appropriate for the Korean cultural setting and describes actual case studies.
Methods:This study focused on single inductive case studies of the utilization of an advance care planning workbook and recruited individual participants.
Results:The workbook for adolescents contained six sessions and the workbook for children contained seven sessions. The workbook sessions led to four major discoveries: 1) considering the Korean cultural context, discussions on life and death must be held indirectly; 2) the role of the counselor as a supporter is crucial for the workbook to be effective; 3) the workbook must be accessible regardless of the seriousness of the illness; and 4) patients must be able to make their own choice between the workbook versions for children and adolescents. Six facilitating factors improved engagement: 1) the role of the counselor as a supporter; 2) building trust with the patient; 3) affirming freedom of expression on topics the patient wished to avoid talking about; 4) having discussions on what private information to keep secret and to whom the information can be disclosed; 5) discovering and regularly discussing relevant topics; and 6) regular communication and information-sharing with the patient’s medical service providers. Conclusion: It is necessary to build on actual case studies regarding workbooks for children and adolescents in order to expand the usage of these workbooks to all relevant medical institutions in Korea.
