Survey of the End-of-life Care Preferences of Patients with Mild Dementia and Differences from Hopes of Familial Caregivers Regarding End-of-life Care for Patients
10.14442/generalist.44.45
- VernacularTitle:軽度認知症者の終末期医療に対する意向調査と家族介護者との相違
- Author:
Daisuke TODA
;
Ai HIROSE
;
Mariko HATA
;
Mari SASAKI
;
Saki OJYARA
;
Yuya TAKAYAMA
;
Syoryoku HINO
;
Tatsuru KITAMURA
- Keywords:
end-of-life care;
dementia;
decision making
- From:An Official Journal of the Japan Primary Care Association
2021;44(2):45-52
- CountryJapan
- Language:Japanese
-
Abstract:
Introduction: We investigated the end-of-life care preferences of patients with mild dementia and compared them with the hopes of caregivers regarding end-of-life care for patients.Methods: A questionnaire survey was conducted among outpatients with mild dementia or mild cognitive impairment and their family caregivers who visited the Medical Center for Dementia.Results: We analyzed 50 pairs of dementia patients and their family caregivers. Of people with dementia, 24 respondents (48.0%) preferred "antibiotics and infusions for pneumonia" at the end of life. Eleven respondents (22.0%) preferred "central parenteral nutrition". Eight respondents (16.0%) preferred "resuscitation". For each end-of-life care item, the concordance rate between patients and caregivers on "prefer" / "do not prefer" was 0%-76%. Patients and their families who discussed end-of-life care had a significantly higher concordance rate for "resuscitation" preference than those who did not.Conclusion: For patients and their families to be able to make decisions they do not regret, it is important to promote discussions about end-of-life medical care before the patient's condition becomes severe.
