Actual Usage of a Pamphlet for Families of Terminally Ill Patients With or Without Cancer at Home
- VernacularTitle:終末期在宅療養を支える看取りのパンフレット使用の実態─がん患者の家族と非がん患者の家族について─
- Author:
Yuki KUMAGAI
1
;
Yasuko TABUCHI
1
;
Kazuko MUROYA
1
Author Information
- Keywords: end of life; home care; pamphlet; family of cancer patient; family of non-cancer patient
- From:Palliative Care Research 2021;16(2):139-145
- CountryJapan
- Language:Japanese
- Abstract: Objective: The purposes of this study were to explore the actual usage of a pamphlet for families of terminally ill patients both with and without cancer at home. Methods: We sent a questionnaire to 2,000 home-visit nursing administrators and obtained answers from 430. This study included 224 pamphlet users. Results: The pamphlet was used with 95.1% of families of cancer patients and with 76.8% of families of non-cancer patients. Most pamphlet users were concerned with the following: degree of worry and anxiety of the family, and the family’s and the patient’s hope for an at home death (families of both cancer patients and non-cancer patients more than 84%). The pamphlet was given to about 60% of families of both cancer patients and non-cancer patients between last last week and last month of life. Administrators found it difficult to decide the appropriate timing to hand out the pamphlet to 59.6% of families of cancer patients and 69.7% of families of non-cancer patients. Conclusion: Pamphlet use may be improved by clarifying the appropriate timing to give out the pamphlet.
