Construction of the registration management system for medical information of rare disease cases
10.3760/cma.j.cn111325-20200217-00180
- VernacularTitle:罕见病病例诊疗信息登记管理体系构建
- Author:
Xueping QIU
1
;
Yumin LIU
;
Zhenyu PAN
;
Fang ZHENG
;
Ling LIU
Author Information
1. 武汉大学中南医院检验科/临床基因诊断中心 430071
- From:
Chinese Journal of Hospital Administration
2020;36(11):931-933
- CountryChina
- Language:Chinese
-
Abstract:
Medical information registration of rare disease cases serves as scientific basis for development of population intervention strategy, improvement of medical service system, better patient medical support level, and higher medicine accessibility. Based on their hospital work, the authors introduced the development practice of an all-dimensional management system for such information registration, in terms of formulating policies, establishing organizational structure, organizing and publicizing policies for the medical service of rare diseases, maintaining registration data and so on, so as to provide the reference for the management of registration work of rare diseases.
