Home care experience of parents caring for children with Kawasaki disease complicated with giant coronary aneurysm:a qualitative research
10.3760/cma.j.cn211501-20191017-02941
- VernacularTitle:川崎病并发巨大冠状动脉瘤患儿父母居家照护体验的质性研究
- Author:
Fang TANG
1
;
Shunqing LUO
;
Hong YANG
;
Ting CHENG
;
Li ZENG
;
Weilang DING
;
Ying GAO
;
Defen CHEN
Author Information
1. 重庆医科大学附属儿童医院全科病房 儿童发育疾病研究教育部重点实验室 国家儿童健康与疾病临床医学研究中心 儿童发育重大疾病国家国际科技合作基地 儿科学重庆市重点实验室 400014
- From:
Chinese Journal of Practical Nursing
2020;36(31):2445-2450
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To explore the real experience of parents caring for children with Kawasaki disease complicated with giant coronary artery aneurysm at home,in order to provide reference for targeted interventions.Methods:With phenomenological approaches in qualitative study,semi-structured interviews were conducted among 10 parents whose children with Kawasaki disease complicated with giant coronary artery aneurysm, and Colaizzi 's 7-step analysis method was used to analyze the data and extract the theme.Results:The care experience of parents were classified into four themes:continued negative emotions;lacked of family care knowledge;bore a huge burden of care; eager for support strength.Conclusions:Parents of children with Kawasaki disease complicated with giant coronary artery aneurysm have many difficulties in disease management,family care and other aspects in the process of caring for children.They also bear a greater burden of psychological pressure.Medical workers should pay attention to parent′s psychological status and related problems,and provide effective intervention measures to promote the rehabilitation of children and improve the quality of life of the family.
