Qualitative study on psychological experience of male hemophilia patients in childbearing age
10.3760/cma.j.cn211501-20190710-01927
- VernacularTitle:育龄期男性血友病患者心理体验的质性研究
- Author:
Hong CHU
1
;
Rong FU
;
Bowei SUN
;
Xi SHEN
;
Li WAN
Author Information
1. 南京大学医学院附属鼓楼医院血液科 210008
- From:
Chinese Journal of Practical Nursing
2020;36(14):1062-1067
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To further explore the self-knowledge and real experience of hemophilia patients in childbearing age, and provide evidence for nursing workers to design and implement personalized effective intervention strategies.Methods:A semi-structured in-depth interview was conducted among 10 hemophilia patients of hemophilia clinic in our hospital with the purpose sampling method. The data were analyzed by Colaizzi 7-step analysis.Results:Three major themes were refined: emotional experience (role change, fertility anxiety, lack of self-confidence in interpersonal relationships); lack of knowledge; disease benefit.Conclusion:Patients with hemophilia have diverse and complex real psychological experiences during childbearing age. Medical staff develop targeted and personalized health education strategies for patients at this stage to better prevent and treat them and improve their quality of life. Population quality.
