Quality-of-life of Pediatric Cancer Patients Receiving End-of-life Care and Related Factors: Using a Proxy QOL Rating Scale from the Nurse’s Perspective
- VernacularTitle:終末期にある小児がん患者のQOLと関連要因─看護師によるQOL代理評価尺度を用いて─
- Author:
Yuko NAGOYA
1
;
Mitsunori MIYASHITA
2
;
Wataru IRIE
3
;
Nobuyuki YOTANI
2
;
Hitoshi SHIWAKU
4
Author Information
- Keywords: end-of-life; quality-of-life; proxy rating scale; pediatric palliative care; pediatric cancer
- From:Palliative Care Research 2020;15(2):53-64
- CountryJapan
- Language:Japanese
- Abstract: Objectives: The study purpose was to examine quality-of-life (QOL) of pediatric cancer patients at end-of-life and related factors using a QOL proxy rating scale from the nurse’s perspective. Methods: We conducted a survey in October 2015−February 2016. The subjects to be surveyed were nurses who were primarily in charge of patients with childhood cancer at end-of-life. We investigated 22 items of the Good Death Inventory for Pediatrics (GDI-P) and their related factors. Results: In total, 53 proxy evaluate questionnaires were completed from 18 centers. Among the eight factors of GDI-P, “Relief from physical and psychological suffering” was the lowest. The total score of GDI-P was positively correlated with the structure and process of care (r=0.58). Although there was a bias in the number of cases, in the case of the place of death was the intensive care unit, the total score of GDI-P was lower than home and the general ward. Conclusions: It was suggested that the top priority in improving QOL was relief from suffering and the structure and process of care were related to QOL.
