Experience of Caregivers Caring for Children with Cerebral Palsy in Accessing Oral Health Care Services: A Qualitative Study
10.21315/aos2019.14.2.381
- Author:
Datu Mohd Amyril Abduludin
1
Author Information
1. School of Dental Sciences, Universiti Sains Malaysia, 16150 Kubang Kerian, Kelantan, Malaysia
- Collective Name:Normastura Abd Rahman; Munirah Mohd Adnan; Azlina Yusuf
- Publication Type:Journal Article
- Keywords:
Accessibility;
cerebral palsy;
dental;
oral health;
qualitative research
- From:Archives of Orofacial Sciences
2019;14(2):133-146
- CountryMalaysia
- Language:English
-
Abstract:
Maintaining oral health (OH) is a serious issue in children with cerebral palsy (CP) for their inability
to perform effective OH care as well as for lack of accessibility to dental services. This study explored
the experience of the caregivers on accessibility towards OH facilities for their children with CP in
Kota Bharu, Kelantan. A purposive sampling technique was utilised. In-depth interviews using guided
questions captured with audio-recorder were conducted on caregivers of children with CP. Verbatim
transcription of the interviews were reviewed with field notes, and themes were developed using NVivo
software. Ten caregivers of children with CP aged 32–64 years old participated, which were mostly from
low socio-economic status and low level of education. The age of children with CP in this study were
between nine to 18 years old. From the ten verbatim transcripts, five themes emerged which were dental
experience, family support, mobility, ability to pay and social value. The caregivers experienced both
demanding and unique challenges in acquiring OH care services for their children with CP according to
their experiences in obtaining OH services in Kota Bharu, Kelantan. Therefore, attentions are needed to
address these problems that are hindering the access to OH facilities for children with CP.
- Full text:2.2019my0179.pdf
