Qualitative research of the psychological experience of the main caregivers of hepatocellular carcinoma with hepatitis B virus
10.3760/cma.j.issn.1672-7088.2018.21.010
- VernacularTitle: 肝癌合并乙型病毒性肝炎患者照顾者心理体验的质性研究
- Author:
Caiyun LI
;
Wei ZHANG
1
;
Xinyu BI
;
Liming WANG
;
Fang HE
;
Yaoyuan LI
Author Information
1. Department of Hepatobiliary Surgery, National Cancer Center/National Clinical Research Center for Cancer/Cancer Hospital, Chinese Academy of Medical Sciences and Peking Union Medical College, Beijing 100021, China
- Publication Type:Journal Article
- Keywords:
Liver neoplasms;
Viral hepatitis type B;
Caregivers;
Psychological experience;
Qualitative research
- From:
Chinese Journal of Practical Nursing
2018;34(21):1642-1646
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To explore the psychological experience of the caregivers of Hepatocellular Carcinoma with Hepatitis B virus.
Methods:Semi-structured Interviews were performed in a total of 12 main caregivers of Hepatocellular Carcinoma with Hepatitis B in the Chinese Academy of Medical Sciences from October 2016 to March 2017, and the original data was analyzed according to the Colaizzi 7-step method.
Results:A total of five topics were extracted, including Awareness of relief stress when the diagnosis was informed, Indebtedness and self-blame, fear and sadness of possible loss of loved ones, stressful anxiety (stress of economy, loss of function, worrying about being infected), and joint stigma.
Conclusions:Many psychological experiences of main caregivers of patients with hepatocellular carcinoma combined with hepatitis B coexist in the course of care. Exploring and providing effective care support based on the psychological experience and needs of caregivers is one way to improve physical and mental health and the quality of care for patients.