Ways of acquiring and needs of requiring disease-related knowledge among patients with inflammatory bowel disease
10.3760/cma.j.issn.1671-7368.2018.08.010
- VernacularTitle: 炎症性肠病患者获取疾病信息方式与需求分析
- Author:
Saizheng LIN
1
,
2
;
Yan CHEN
1
;
Qunfen CAO
3
Author Information
1. Department of Gastroenterology, the Second Affiliated Hospital of Zhejiang University School of Medicine, Hangzhou 310009, China
2. Department of Gastroenterology, Ningbo Seventh Municipal Hospital, Ningbo 315202, China
3. Department of Gastroenterology, Ningbo Seventh Municipal Hospital, Ningbo 315202, China
- Publication Type:Journal Article
- Keywords:
Colitis, ulcerative;
Crohn disease;
Access to information
- From:
Chinese Journal of General Practitioners
2018;17(8):621-625
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To survey the ways of acquiring and the needs of requiring disease-related knowledge among patients with inflammatory bowel disease (IBD).
Methods:A total of 376 IBD patients visiting the special clinic in the Second Affiliated Hospital of Zhejiang University School of Medicine from May 2013 to March 2016 participated in a questionnaire survey. The self-designed questionnaire included general information, hospital visits and internet use of the IBD patients.
Results:Totally 359 valid questionnaires were returned with a recovery rate of 95.5% (359/376). Among the participants there were 226 men and 133 women with a mean age of 41.8 years (14- 88 years); and 199 cases of Crohn disease (55.4%) and 160 cases of ulcerative colitis 44.6%. The main methods of acquiring IBD-related knowledge were information from IBD specialist (77.7%, 279/359) and using the internet (59.3%, 213/359). The most frequently searched itemsin internet werelong-term prognosis (97.2%, 207/213), medical treatment (76.1%, 162/213), etiology (58.2%, 124/213) and nutrition treatment (51.6%, 110/213); 96.6% (347/359) patients showed strong interest in keeping close connection with IBD specialist and 89.0% (319/359) wanted to join a IBD club.
Conclusion:IBD patients show strong interest indisease-related knowledge, which they acquire most from the doctors and the internet, IBD specialists are expected to provide the detailed health education for patients.
