The Unmet Needs Among Parents of Disabled Children at Support Institutions in Kelantan, Malaysia
- Author:
Mohd Ismail Ibrahim1, Raishan Shafini Bakar2, Surianti Sukeri1, Azriani Ab Rahman1, Azizah Othman3, Hans Van Rostenberghe3, Aziah Daud1, Mohd Nazri Shafei1
1
Author Information
1. Department of Community Medicine, School of Medical Sciences, Universiti Sains Malaysia, Health Campus, 16150 Kota Bharu, Kelantan, Malaysia 2 Department of Psychiatry, School of Medical Sciences, Universiti Sains Malaysia, Health Campus, 16150 Kota Bharu, Kelantan, Malaysia 3 Department of Paediatric, School of Medical Sciences, Universiti Sains Malaysia, Health Campus, 16150 Kota Bharu, Kelantan, Malaysia
- Publication Type:Journal Article
- Keywords:
Needs;
Parents;
Disabled children;
Malaysia
- From:Malaysian Journal of Medicine and Health Sciences
2019;15(3):74-80
- CountryMalaysia
- Language:English
-
Abstract:
Abstract:Introduction: Parents of a disabled child might require extra basic needs which most of the time are unmet due to several factors. Thus, understanding the unmet needs could help the respective institution to provide and prioritise the needs required. Methods: A cross-sectional study was conducted between September to December 2013 to determine the proportion of unmet needs among parents of children with disabilities at support institutions in Kelantan, Malaysia. Biological parents of disabled children aged between 2 to 18 years old were included in the study. A 35item validated Malay version of the Family Needs Survey was used in this study. A scoring of 4-point Likert scale was used; the prevalence of unmet needs was determined based on the proportion of those who scored “3” from each domain. Results: A total of 226 parents were involved in the present study. The mean age of parents and children were 44.6 (8.99) and 10.2 (4.85) years old respectively. The most common type of disabilities was learning disability (n=151, 66.8%). The unmet need for information has the highest prevalence (97.8%), followed by the unmet need for social support (93.8%). Conclusion: Parents with disabled children require information to guide them in managing their children. Findings from this study may better enable policymakers to devote resources in assisting parents, and service providers in designing appropriate interventions in fulfilling the unmet needs of these parents.
- Full text:11.2018my0455.pdf
