- Author:
Doris Lau Sie Chong
1
Author Information
- Collective Name:Doris Lau Sie Chong, MD; Ezdiani Azim, MMed Paeds; Zarina Latiff, MMed Paeds; Syed Zulkifli Syed Zakaria, PhD; Sau Wei Wong, MRCPCH; Loo Ling Wu, MRCP; Joyce Soo Synn Hong, MMed Paeds; Hamidah Alias, MMed Paeds; C-Khai Loh, MRCPCH; Bilkis Abd Aziz, MMed Paeds; Rahmah Rasat, MMed Paeds; Kanaheswari Yoganathan, MRCP
- Publication Type:Journal Article
- Keywords: Transition care; transition readiness; transition scale; adolescent; young adult
- From: The Medical Journal of Malaysia 2018;73(6):382-387
- CountryMalaysia
- Language:English
- Abstract: Introduction: A smooth transition of healthcare for young people with chronic illnesses from paediatric to adult healthcare services is important to ensure optimal outcome. At the moment, there are no standard guidelines to assess a patient's readiness to transfer care. Methods: A cross-sectional study using a self-administered questionnaire, adapted from UNC (University of North Carolina) TRxANSITION self-assessment tool was conducted to evaluate patients’ transition care readiness in paediatric haematology and paediatric diabetes clinic. Results: A total of 80 patients (37 thalassaemia and 43 diabetes) with the mean age of 21.2 (SD±4.3) years, were recruited during the 3-month study period. Majority of the patients have basic knowledge regarding their medications, and were able to comply with their follow-up. The mean total score obtained by the respondents on this questionnaire was 15.3 (SD±3.59). Self-management skills and knowledge on disease were the two poorly scored section; with mean score of 3.78 (SD±1.38) and 4.28 (SD±1.20) respectively. Overall, only 21 (26.2%) respondents obtained high score (score above 75th percentile). Seventy-five percent of the respondents admitted that they were not ready for transfer to an adult healthcare service yet at the time of the study. Conclusion: We suggest that patients with high score should be prepared for transition to adult facility whereas those with a low score need to be identified to ensure provision of continuous education.
- Full text:6.2018my1352.pdf