End-of-life Care and Good Death of Dying Non-cancer Patients from the Perspective of Bereaved Family Members

Akiko Unesoko; Kazuki Sato; Yuka Onishi; Mitsunori Miyashita; Tatsuya Morita; Masahiro Iwabuchi; Yuna Goto; Hiroya Kinoshita

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End-of-life Care and Good Death of Dying Non-cancer Patients from the Perspective of Bereaved Family Members

VernacularTitle:非がん患者の終末期のケアと望ましい死の達成の遺族による評価
Author: Akiko UNESOKO ¹ ; Kazuki SATO ² ; Yuka ONISHI ¹ ; Mitsunori MIYASHITA ³ ; Tatsuya MORITA ⁴ ; Masahiro IWABUCHI ³ ; Yuna GOTO ⁵ ; Hiroya KINOSHITA ³
Author Information

1. Fundamental and Clinical Nursing, Department of Nursing, Graduate School of Medicine, Nagoya University
2. Department of Nursing, Konan Kosei Hospital
3. Department of Palliative Nursing, Health Sciences, Graduate School of Medicine, Tohoku University
4. Department of Nursing, School of Health Sciences, Nagoya University
5. Palliative and Supportive Care Division, Seirei Mikatahara General Hospital
Keywords: heart failure; cerebrovascular disorders; pneumonia; terminal care; outcome and process assessment
From:Palliative Care Research 2019;14(3):177-185
CountryJapan
Language:Japanese
Abstract: Objectives: To assess the perception of care and outcomes of end-of-life palliative care by bereaved family members to determine differences in care provided to patients with and without cancer. Methods: This cross-sectional, anonymous survey using a self-reporting questionnaire for bereaved family members was conducted online. Care was assessed using overall satisfaction score and the care evaluation scale (CES) and outcomes were assessed using good death inventory (GDI). Results: The present study included data from 118 patients with cancer and 299 patients without cancer (103, heart failure; 71, stroke; and 125, pneumonia). The overall satisfaction score was not significantly different between patients with and without cancer. Conversely, physical care score in the CES and autonomy score in the GDI were significantly lower in patients without cancer than in patients with cancer (p<0.05). Conclusion: The satisfaction with end-of-life care was comparable between the bereaved family members of patients without cancer and those of patients with cancer. However, results related to some items of CES and GDI suggest that some components of end-of-life care for patients without cancer might require attention. Not only treatment of the underlying disease but also relief of suffering is important to improve end-of-life care.