Qualitative study of negative emotion in primary caregivers ofearlydiagnosed children with acute leukemia
10.3760/cma.j.issn.1672-7088.2019.01.010
- VernacularTitle:急性白血病患儿确诊初期主要照顾者负性情绪的质性研究
- Author:
Rongrong LI
1
;
Yuying CHAN
;
Jinling MA
;
Qi YANG
;
Chunxu ZHANG
;
Pengfei ZHENG
Author Information
1. 苏州大学医学部护理学院 215006
- Keywords:
Leukemia;
Caregiver;
Children;
Negative mood
- From:
Chinese Journal of Practical Nursing
2019;35(1):47-51
- CountryChina
- Language:Chinese
-
Abstract:
Objective To understand the negative emotion in primary caregivers of early diagnosed children with acute leukemia. Methods By purposive sampling, 17 cases were selected and investigated by semi-structuredinterviews. Colaizzi principles were used to analyze the data. Results Three themes were extracted:complex emotional response, too many concerns and weak support system. Conclusions The primary caregivers of children with acute leukemia at the early stage of diagnosis have negative emotions such as anxiety and fear, and suffer from psychological and economicpressures.Nurses should provide disease-related nursing skills training and personalized psychological care,and call for the establishment of the social support system and online communication platformto really meet their needs and alleviate the burden of care in order to better meet the follow-up treatment and care of children.
