Design of a Hospice Referral System for Terminally Ill Cancer Patients Using a Standards-Based Health Information Exchange System.
10.4258/hir.2018.24.4.317
- Author:
Kahyun LIM
1
;
Jeong Whun KIM
;
Sooyoung YOO
;
Eunyoung HEO
;
Hyerim JI
;
Beodeul KANG
Author Information
1. Office of e-Health Research and Business, Seoul National University Bundang Hospital, Seongnam, Korea.
- Publication Type:Original Article
- Keywords:
Hospices;
Referral and Consultation;
Health Information Exchange;
Cancer Care Facilities;
Methodological Study
- MeSH:
Advisory Committees;
Cancer Care Facilities;
Health Information Exchange*;
Health Level Seven;
Hospices*;
Humans;
Investments;
Methods;
Patient Admission;
Referral and Consultation*;
Terminally Ill*;
Tertiary Care Centers
- From:Healthcare Informatics Research
2018;24(4):317-326
- CountryRepublic of Korea
- Language:English
-
Abstract:
OBJECTIVES: The demand for hospice has been increasing among patients with cancer. This study examined the current hospice referral scenario for terminally ill cancer patients and created a data form to collect hospice information and a modified health information exchange (HIE) form for a more efficient referral system for terminally ill cancer patients. METHODS: Surveys were conducted asking detailed information such as medical instruments and patient admission policies of hospices, and interviews were held to examine the current referral flow and any additional requirements. A task force team was organized to analyze the results of the interviews and surveys. RESULTS: Six hospices completed the survey, and 3 physicians, 2 nurses, and 2 hospital staff from a tertiary hospital were interviewed. Seven categories were defined as essential for establishing hospice data. Ten categories and 40 data items were newly suggested for the existing HIE document form. An implementation guide for the Consolidated Clinical Document Architecture developed by Health Level 7 (HL7 CCDA) was also proposed. It is an international standard for interoperability that provides a framework for the exchange, integration, sharing, and retrieval of electronic health information. Based on these changes, a hospice referral scenario for terminally ill cancer patients was designed. CONCLUSIONS: Our findings show potential improvements that can be made to the current hospice referral system for terminally ill cancer patients. To make the referral system useful in practice, governmental efforts and investments are needed.
