Big data in precision medical research and the establishment of the privacy protection system
10.3760/cma.j.issn.1006-1924.2018.01.001
- VernacularTitle:精准医学研究中的大数据与隐私保护体系建设
- Author:
Xinjie XU
1
,
2
,
3
;
Ling ZHU
;
Hui HUANG
Author Information
1. 100730 中国医学科学院北京协和医院科研处
2. 中国医学科学院北京协和医院中心实验室&协和转化医学中心
3. 北京协和医学院
- Keywords:
Precision medicine;
Big data;
Privacy protection;
Medical ethics
- From:
Chinese Journal of Medical Science Research Management
2018;31(1):3-7,11
- CountryChina
- Language:Chinese
-
Abstract:
Objective Precision medical research is highly depended on the collection and analysis of big data from the new generation of life science.These data will inevitably contain a lot of sensitive information relating to individual privacy.This paper mainly investigates how to effectively integrate and share big data under the premise of protecting the privacy of participants and patients.Methods The international policies on precision medical big data and privacy protection were briefly summarized and analyzed.The establishment of the privacy protection system on big data in precision medical research was also explored,mainly from the aspects of technology research and development,ethical norms and policy construction.Results Several suggestions and strategies were put forward for the development of big data privacy protection system,including construction of ethical norms and policies,development of big data privacy protection technology,privacy protection education of participants and patients,fully transparent informed consent and some other related strategies.Conclusions These suggested strategies on the establishment of big data privacy protection system will provide references for promoting the establishment of related policies and regulations in our country.And this privacy protection system will certainly protect and promote the long-term healthy development of precision medicine.
