Correlation between quality of life and joint health status of adult hemophilia patients
10.3760/cma.j.issn.1673-4904.2018.03.017
- VernacularTitle:成年血友病患者生命质量与关节健康状况的相关性研究
- Author:
Yanxue WANG
1
;
Xiaojing XU
;
Zhaohui YANG
;
Gang WANG
;
Xiling XIAO
;
Xiaoxuan XIA
;
Xuan PENG
Author Information
1. 华中科技大学同济医学院附属协和医院康复科
- Keywords:
Hemophilia A;
Hemophilia B;
Quality of life;
Joint health status
- From:
Chinese Journal of Postgraduates of Medicine
2018;41(3):256-259
- CountryChina
- Language:Chinese
-
Abstract:
Objective To investigate the correlation between the quality of life and joint health status of adult hemophilia patients. Methods Forty-nine adult hemophilia patients were selected.The quality of life and joint health status of patients were evaluated by hemophilia-specific health related quality of life questionnaire for adults (Hemo-QOL-A) and hemophilia joint health score (HJHS). Results The Hemo-QOL-A score of adult hemophilia patients was (39.34 ± 18.97) scores, and HJHS score was(33.16 ± 13.17)scores.The Pearson correlation analysis result showed that Hemo-QOL-A score was positively related with HJHS score (r = 0.490, P<0.05), and Hemo-QOL-A score was positively correlated with muscular condition,joint activity and joint friction sound score of HJHS score(r=0.469, 0.396 and 0.290; P<0.05). Hemo-QOL-A score was not correlated with swelling, swelling duration, arthralgia and gait of HJHS score (P>0.05). In 294 joints of 49 patients, the total abnormal rate of the joint was 82.7%(243/294),the abnormal rate of the elbow joint was 72.4%(71/98),the abnormal rate of the knee joint was 90.8%(89/98),and the abnormal rate of ankle joint was 84.7%(83/98).Conclusions Decreased joint health status, mainly including the surrounding muscle condition and joint mobility, results in lower quality of life in patients with hemophilia.
