The real experience of patients with multiple myeloma during treatment: a qualitative study
10.3760/cma.j.issn.1672-7088.2018.31.011
- VernacularTitle:多发性骨髓瘤患者治疗期间真实体验的质性研究
- Author:
Bowei SUN
1
;
Rong FU
;
Hong CHU
;
Fan ZHU
;
Ziyan ZHANG
Author Information
1. 210008,南京中医药大学护理学院
- Keywords:
Multiple myeloma;
Treatment;
Real experience;
Qualitative study;
Adverse reactions
- From:
Chinese Journal of Practical Nursing
2018;34(31):2445-2450
- CountryChina
- Language:Chinese
-
Abstract:
Objective To explore the real experience during treatment of patients with multiple myeloma, so as to provide evidences for clinical nursing staff to implement targeted nursing measures and to carry out research on nursing staff of high evidence level. Methods Using phenomenological methods, nine cases of patients with multiple myeloma conducted semi-structured and in-depth interviews and then using Colaizzi 7-step for analysis. Results Three major topics were extracted: poor physiological experience (feeling abnormal, numbness, pain, urinary incontinence), positive response (family support, Increased medical standards, self-regulation), self-perceived burden (economic stress, short cycle of relapse, psychological burden). Conclusion Treatment of multiple myeloma have many adverse reactions, and patients bear too much psychological burden. Medical staff need to be evaluated in a timely manner, strengthen symptom management, provide comprehensive information support, analysis of patient self-perception burden causes, propose targeted interventions, and build continuation care system to improve patient treatment experience.