A survey on the standardized treatment of 33 cases of children thalassemia and their family economic burden in Bao'an district, Shenzhen city, 2009
10.3760/cma.j.issn.1000-4955.2011.03.029
- VernacularTitle:2009年深圳市宝安区33例地中海贫血患儿规范治疗及家庭负担情况调查
- Author:
Wei, WANG
;
Jian-mei, LI
;
Shao-ying, LI
;
Rui-ying, WEN
;
Yu-li, CHENG
;
Hua, ZHOU
- Publication Type:Journal Article
- Keywords:
Thalassemia;
Economics;
Therapy;
Cost of illness
- From:Chinese Journal of Endemiology
2011;30(3):332-335
- CountryChina
- Language:Chinese
-
Abstract:
Objective To investigate the standardized treatment of 33 children with thalassemia and their family financial burden registered in Bao'an district, Shenzhen city, and to provide basic information for formulating health policy for the government. Methods In 2009, preliminary investigations on 39 registered families with thalassemia children were conducted by telephone, and a household survey was made to collect treatment and economic status by questionnaire on 33 children. Results Among 33 cases of thalassemia children, 21 cases(63.7%) were severe anemia, 5 cases( 15.1%) in need of care or special care, and 25 cases(75.8%) were difficult or unable to maintain standardized treatment. The average family monthly income and expenditure was (4060 ± 2002) and (4926 ± 2991) yuan, respectively. The average monthly treatment costs were (2665 ± 1872) yuan, and the average debt amounted to (64 600 ± 53 940) yuan. Fifteen families[60.0%(15/25)] would reduce the times of blood transfusions or iron transpirations when they encountered revenue deficiency. Conclusions The heavy economic burdens on families with children thalassemia result in inadequate or interrupted treatment on sick children and affect their survival and quality of life, which should be taken more attention and social care.
