Impact of cerebral palsy on the quality of life in patients and their families
- Author:
Melisa Seer Yee Lim
;
Chee Piau Wong
- Publication Type:Journal Article
- From:Neurology Asia
2009;14(1):27-33
- CountryMalaysia
- Language:English
-
Abstract:
Measuring QOL is a field that is gaining interest among researchers worldwide. This is a prospective,
descriptive study that aimed to look at the impact of health-related quality of life (HRQL) of cerebral
palsy in the lives of patients and their families. Methods: Patients attending the Paediatric Rehabilitation
Clinic at University of Malaya Medical Centre were interviewed prospectively using the Lifestyle
Assessment Questionnaire – Cerebral Palsy. Results: A total of 27 patients were interviewed. Three
(11.1%) patients reported severely affected quality of life. Seven (25.9%) patients reported moderately
affected quality of life and 10 (37%) reported mildly affected quality of life. The worst score of 76
were reported in 2 patients. The best score of 11 was reported in one patient.
Conclusion: The impairment and disability due to cerebral palsy is likely to be similar in both
developing and developed countries. However, the quality and type of care received by patients are
likely to determine the resultant handicap and the implication on the quality of life
- Full text:P020150901595718321429.pdf