The Experiences And Challenges In Caring For HIV/AIDS Patients: A Qualitative Exploration Among
- Author:
Pei Lin Lua
;
Norhayati Mustapha
;
Ramle Abdullah
;
Ahmad Kashfi Abdul Rahman
- Publication Type:Journal Article
- Keywords:
HIV/AIDS;
Family Caregivers;
Experiences and Challenges
- MeSH:
HIV;
Caregivers;
Islam;
Life Change Events;
Patients;
Malaysia
- From:ASEAN Journal of Psychiatry
2014;15(2):120-130
- CountryMalaysia
- Language:English
-
Abstract:
Objective: The family caregiver has a pivotal role in the management of HIV/AIDS patients and their well-being is consequently crucial as it could impact negatively on the quality of caregiving. This preliminary qualitative
investigation intended to explore and describe the challenges and experiences of HIV/AIDS family caregivers in Terengganu, Malaysia. Methods: A convenient
sample of family caregivers of HIV/AIDS patients who were aware of the diagnosis was enrolled. Recruitment was conducted in Hospital Sultanah Nur Zahirah, Kuala Terengganu, Malaysia and semi-structured interviews were
used. Results: Results were transcribed into verbatim before being subjected to analysis. Twelve Muslim caregivers consented participation (age range = 18.0 -
81.0; female = 75.0%, mother/wife = 50.0%; married = 83.3%; ≤ primary school = 50.0%; and self-employed = 66.7%). The four major themes that emerged
were challenges of caregiving, financial issues, stigma and discrimination, and support for caregivers. Additionally, caregivers did mention several positive
aspects of their caregiving role including satisfaction from helping family member and improved family relationships. Conclusion: A variety of life aspects
were negatively affected by caring for HIV patients, thus requiring a multidisciplinary approach to address such issues.
- Full text:P020140822393996258195.pdf
