Validity and reliability of the Chinese parent proxy and child self-report health related quality of life measure for children with epilepsy (CHEQOL-25) in Malaysia
- Author:
Su Woan Wo
;
Pauline Siew Mei Lai
;
Lai Choo Ong
;
Wah Yun Low
;
Kheng Seang Lim
;
Chee Geap Tay
;
Chee Piau Wong
;
Ranjini Sivanesom
- Publication Type:Journal Article
- Keywords:
Childhood epilepsy
- MeSH:
Epilepsy
- From:Neurology Asia
2016;21(3):235-245
- CountryMalaysia
- Language:English
-
Abstract:
Objective: To determine the validity and reliability of the Chinese parent proxy and child self-report
health related quality of life measure for children with epilepsy (CHEQOL-25) in Malaysia. Methods:
Face and content validity of the Chinese parent proxy and child self-report CHEQOL-25 was verified
by an expert panel, and piloted in five children with epilepsy (CWE). The Chinese CHEQOL-25 was
then administered to 40 parent proxies and their CWE (aged 8-18 years), from two tertiary hospitals,
at baseline and 2 weeks later. Results: Forty parents and their CWE were recruited. Cronbach’s alpha
for each subscale ranged from 0.56-0.83. At test-retest, the interclass correlation for all items ranged
from 0.68-0.97. Items 8 and 25 were removed as their corrected item-total correlation values were
<0.3. Epilepsy severity, the number of anti-epileptic drugs taken daily, number of close friends and
number of time spent with friends were found to be associated with the parent proxy CHEQOL-25
score. Duration of epilepsy, child’s cognitive ability, number of close friends and number of time spent
with friends were associated with child self-report CHEQOL-25. The parent proxy and the child selfreport
showed high to fair agreement on the “interpersonal/social” [Intraclass correlation coefficient
(ICC)=0.670, p<0.001] and “epilepsy secrecy” subscale (ICC=0.417, p=0.048).
Conclusions: Our small study found that the Chinese CHEQOL-25 was a valid and reliable questionnaire
to assess the quality of life of children with epilepsy from the parent prospective and child self-report
when items 8 and 25 were removed.
- Full text:P020161014314159954202.pdf
