Responsiveness and feasibility evaluation on quality of life instruments for patients with systemic lupus erythematos
10.3760/cma.j.issn.1674-6554.2017.05.019
- VernacularTitle:系统性红斑狼疮生命质量量表反应度及可行性评价
- Author:
Yulan YU
;
Zhaoping LYU
;
Chonghua WAN
;
Guanhong WANG
;
Jian XU
;
Chuanzhi XU
;
Shu JIA
- Keywords:
Systemic lupus erythematos;
Quality of life;
Responsiveness;
Feasibility
- From:
Chinese Journal of Behavioral Medicine and Brain Science
2017;26(5):471-475
- CountryChina
- Language:Chinese
-
Abstract:
ObjectiveTo analyze and evaluate the responsiveness and feasibility of the quality of life instrument for patients with systemic lupus erythematos(SLE).Methods143 cases of SLE patients were measured by QLICD-SLE before and after treatment and the data were analyzed with the traditional hypothesis test and combining the effect size,standardized response mean,the relative efficiency,the standard effect size and the feasibility analysis methods.Results(1)Paired t test before and after treatment indicated that there were significant differences between after treatment and before treatment in physical(t=2.39,P<0.05) and specific module domain(t=2.22,P<0.05),while there were no significant promotion in the scores of psychological function,social function and total score after treatment.There were no significant changes of SES,SRM and CR after treatment.(2)Most patients could understand the meaning of the instrument well and spent 15-20 minutes to finish it.The rate of recovery and completed were 98.0% and 97.8% respectively.ConclusionsThe QLICD-SLE can detect clinical change of treatment with good responsiveness and feasibility.
