Legal Challenges of Precision Medicine on Genetic Privacy Protection
10.12026/j.issn.1001-8565.2017.08.03
- VernacularTitle:精准医疗对基因隐私保护带来的法律挑战
- Author:
Dongmei JI
- Keywords:
Precision Medicine;
Genetic Information;
Privacy Right
- From:
Chinese Medical Ethics
2017;30(8):936-939,944
- CountryChina
- Language:Chinese
-
Abstract:
Precision medicine promotes the development of individual medicine,but also brings about problems to patients' personal privacy,especially for the protection of genetic information.The priority is to establish relative legal framework and specific regulations.America has issued Precision Medicine Initiative:Privacy and Trust Principles and Data Security Policy Principles and Framework,which have become the pioneer in the establishment of related principles and systems.In order to promote the development of Chinese laws and regulations,it is essential to use American practice as reference according to the specific national conditions,and definitely build up several principles,such as informed consent,honesty and credibility,reasonable care and benefit balance,in order to provide perfect genetic data protection system for patients.
