The Life of Adolescent Patients with Complex Congenital Heart Disease.
10.4040/jkan.2010.40.3.411
- Author:
Sunhee LEE
1
;
So Sun KIM
Author Information
1. College of Nursing, Eulji University, Seongnam, Korea.
- Publication Type:Original Article ; English Abstract
- Keywords:
Adolescent;
Congenital heart defect;
Grounded theory;
Life
- MeSH:
Adolescent;
*Adolescent Psychology;
Adult;
Female;
Heart Defects, Congenital/*psychology;
Humans;
Interviews as Topic;
Male;
Perception;
Quality of Life;
Self Concept
- From:Journal of Korean Academy of Nursing
2010;40(3):411-422
- CountryRepublic of Korea
- Language:Korean
-
Abstract:
PURPOSE: In the present study, an analysis of the life of adolescents with complex congenital heart disease (CHD) was done using grounded theory. Consideration was given to the socio-cultural context of Korea. METHODS: After approval from the institutional review board of Y hospital, 12 patients ranging in age from 14 to 35 were recruited. Data were gathered using in-depth interviews. Theoretical sampling was performed until the concepts were saturated. RESULTS: The results confirmed the life of adolescents with complex CHD as a 'journey to finding uniqueness of oneself as a person with CHD'. The life consisted of 3 stages. In the crisis stage, participants had a feeling of threat to self-existence, and made an effort to be the same as others. In the self-recognition stage, participants who had sufficient role-performance built self-esteem while those who did not fell into self-accusation. In the self-establishment stage, participants who reached sufficiency in independence and knowledge planned the future, whereas those who did not conformed to the realities of life. CONCLUSION: The results of present study provide help in understanding the experiences of adolescents with CHD and provide a basis for developing nursing intervention strategies for these patients.
