An Investigation of Broad Consent and the Health Data Sharing Privacy Protection in Medical Institutions
10.11842/wst.2017.01.017
- VernacularTitle:医疗机构泛知情同意和健康数据共享隐私保护的调查研究
- Author:
Xiaoyun CHEN
;
Qian ZHANG
;
Chenglin ZHANG
;
Lei LIU
;
Sheng LIU
- Keywords:
Broad consent;
privacy protection;
data sharing;
questionnaire investigation
- From:
World Science and Technology-Modernization of Traditional Chinese Medicine
2017;19(1):114-119
- CountryChina
- Language:Chinese
-
Abstract:
With the rapid development of network technology,the data sharing and health research provides an efficient and convenient way for medical research and clinical guidance.In order to know patients' opinions on informed consent and data sharing,we investigated first-class hospitals in the coastal and inland areas with a total of 397 patients participating the questionnaire on clinical health and data sharing,reusing the remaining clinical blood samples in scientific researches,and the acceptance degree of broad consent investigation and related influencing factors.It was found that patients with strong consciousness of informed consent right tended to choose a simpler way of informed consent based on the analysis.Patients preferred social benefits than personal benefits with a strong spirit of dedication to the community.Medical institutions in China rarely applied broad consents and took relervant summative researhes,compared with the European and American countries' promotions at the national level.The research afforded the evidence,from most of patients' point of view to ethics committee in the review of such kind of studies to understand the public data sharing in privacy protection and broad consent of the individual opinion,in order to facilitate the rational development and promotion of health data sharing in China ethically.
