Care Status of the ALS Patients With Long-Term Use of Tracheostomy Tube.
10.5535/arm.2015.39.6.964
- Author:
Yeo Jin PARK
1
;
Jesang LEE
;
Sang Hun KIM
;
Sung Hwa KO
;
Myung Jun SHIN
;
Jae Hyeok CHANG
;
Yong Beom SHIN
Author Information
1. Department of Rehabilitation Medicine, Pusan National University Hospital, Pusan National University School of Medicine, Busan, Korea. yi0314@gmail.com
- Publication Type:Original Article
- Keywords:
Amyotrophic lateral sclerosis;
Tracheostomy;
Long-term care;
Caregiver
- MeSH:
Amyotrophic Lateral Sclerosis;
Caregivers;
Education;
Humans;
Long-Term Care;
Male;
Nurses, Community Health;
Suction;
Tracheostomy*
- From:Annals of Rehabilitation Medicine
2015;39(6):964-970
- CountryRepublic of Korea
- Language:English
-
Abstract:
OBJECTIVE: To evaluate the care status of the amyotrophic lateral sclerosis (ALS) patients with long-term use of tracheostomy tube by caregivers of ALS patients. METHODS: A survey was conducted in the form of questionnaires to ALS patients and their caregivers. All measurements were performed by two visiting nurses. For statistical analysis, SPSS ver. 22.0 and Mann-Whitney U test on non-normal distribution were used. RESULTS: In total, 19 patients (15 males and 4 females) and their caregivers participated in the survey. In the case of patients, the average duration of care was 5.9+/-3.7 years, and the mean periods of illness and tracheostomy were 5.3+/-3.2 years and 3.0+/-2.6 years, respectively. Replacement intervals were 14 days in 11 patients, 7 days in 4 patients, 28 days in 2 patients, and 21 days in 1 patient. One patient was unable to provide an accurate replacement interval. Eighteen (99%) caregivers had experience of adding volume to a cuff without pressure measure in the following instances: due to patients' needs in 7 cases, air leakage in 7 cases, and no reason in 4 cases. Mean pressure of tracheostomy cuff was 40+/-9.4 cmH2O, and air volume of tracheostomy cuff was 6.7+/-3.2 mL, but real mean volume was 7.0+/-2.9 mL. The number of suctioning for airway clearance was a mean 27.5+/-18.2 times a day. CONCLUSION: According to this survey, we notice that almost all the patients and caregivers had an erroneous idea about cuff volume and pressure. Moreover, education and long-term professional care of tracheostomy cannot be overemphasized in this manner.
