Improve long-term outcome of primary immunodeficiency diseases: responsibility of the entire society
10.3760/cma.j.issn.2095-428X.2015.09.001
- VernacularTitle:防治原发性免疫缺陷病——全社会的责任
- Author:
Xiqing YANG
;
Xiaodong ZHAO
- Publication Type:Journal Article
- Keywords:
Primary immunodeficiency diseases;
Stakeholder;
Intravenous immunoglobulin;
Newborn screening;
Hematopoitic stem cell transplantation
- From:
Chinese Journal of Applied Clinical Pediatrics
2015;30(9):641-643
- CountryChina
- Language:Chinese
-
Abstract:
Primary immunodeficiency diseases (PIDs) represent a typical group of rare diseases with high mortality and disability with regard to long-term outcome.Saving life and improving quality of life of the patients with PID remain to be the responsibility of the stakeholders from all aspects of the society.As the central player in the long run of PID campaign,pediatric immunologists should play a critical role in providing key epidemiological data in favor of political decision-making and social resource distribution.
