Factors influencing hemophilic children＇s ability in the activities of daily living
10.3760/cma.j.issn.0254-1424.2013.03.012
- VernacularTitle:血友病患者日常生活活动能力及其影响因素分析
- Author:
Ying LIU
;
Lixia CHEN
- Publication Type:Journal Article
- Keywords:
Hemophilia;
Ability in the activities of daily living
- From:
Chinese Journal of Physical Medicine and Rehabilitation
2013;(3):205-208
- CountryChina
- Language:Chinese
-
Abstract:
Objective To investigate the ability in the activities of daily living (ADL) of children with hemophilia and the factors which influence it.Methods Sixty boys aged 4-12 years with hemophilia were recruited.Their ADL ability was assessed using the functional independence score in hemophilia (FISH).Results The average FISH score of the sixty patients was 25.75 ± 5.71.The percentage of the patients who had experienced functional declines in self-care,transfer and locomotion abilities were 46.7％,55％ and 75％,respectively.There was negative correlation between the patients＇ ages,the replacement therapy they had received and their FISH scores.The Spearman correlation coefficients were-0.371 and-0.388 respectively.The duration and frequency of the preventive therapy and appropriate exercise they had experienced were positively correlated with their FISH scores.The Spearman coefficients were 0.339.0.317 and 0.436 respectively.But there was no correlation between FISH scores and the level of coagulating factor in the subjects＇ blood,their frequency of bleeding in the most recent three months,muscle bleeding,the dosage of replacement therapy or the patient＇s place of residence.Conclusion Seventy-five percent of young,male hemophilia patients manifest a decline in ADL ability.Declines in locomotion occurred the most frequently.The ADL ability of young hemophilia patients probably declines with age.Long term preventive therapy and appropriate exercise would be helpful to maintain ADL ability.
