Qualitative study of care burden of caregivers who take care of patients with spinal cord injury

VernacularTitle:脊髓损伤患者照顾者照顾负担的质性研究
Author: Haiping MA ; Huijuan LU ; Jianying YAO ; Xiaoli YANG
Publication Type:Journal Article
Keywords: Spinal cord injury; Caregivers; Care burden; Qualitative study
From: Chinese Journal of Practical Nursing 2013;(17):1-4
CountryChina
Language:Chinese
Abstract: Objective To investigate the real situation of the burden of the caregivers who take care of patients with spinal cord injury.Methods Using phenomenological research methods of qualitative study,information of 15 family caregivers of patients with spinal cord injury were collected through semi-structured interviews in Jiangxi province,and data were analyzed with Colaizzi 7-step analysis method.Results Four themes were summarized:weak social support system,heavy economic burden,insufficient care ability,mental and physical exhaustion; mental and physical exhaustion concluded three sub-themes:burnout,lifestyle changes,sad/helplessness.Conclusions Care burden of caregivers of patients with spinal cord injury includes four aspects:social,physical,psychological,and less caring capacity.Care workers should be concerned about the health status of the caregivers,give targeted care intervention,so that caregivers can be adapted to the caregivers' role,maintain and promote a high level of health of the patients and their families.