Caregiving Consequence for Dying Elderly Patients with and without Comorbid Dementia from the Perspective of Bereaved Family Members
- VernacularTitle:遺族による終末期高齢患者の介護体験評価:認知症併存の有無での比較と関連要因
- Author:
Kazuki Sato
;
Miyu Serizawa
;
Mitsunori Miyashita
;
Hiroya Kinoshita
- Keywords: dementia; terminal care; caregiver; palliative care; family
- From:Palliative Care Research 2017;12(1):159-168
- CountryJapan
- Language:Japanese
-
Abstract:
Objectives: This study aimed to evaluate the consequences of caring for end-of-life elderly patients from the bereaved family’s perspective. Methods: We conducted a cross-sectional, anonymous, self-report questionnaire survey for bereaved family members by web survey. Outcomes were caregiving consequences (Caregiving Consequences Inventory). We compared the outcomes between with and without dementia. Results: 163 and 224 dying elderly patients with and without comorbid dementia were analyzed from bereaved family members’ responses. The outcomes were not significantly different (burden, 5.24±1.12, 5.32±1.24, p=0.487; fulfillment, 4.53±1.06, 4.59±1.29, p=0.627; growth, 4.94±0.93, 5.00±1.04, p=0.523). Fulfillment was significantly associated with spouse, family visitation, and mental health. Growth was significantly associated with age, spouse, end-of-life discussion, and family preference of treatments. Conclusion: The evaluation of the consequences of caring for end-of-life elderly patients from the bereaved family’s perspective were not significantly between the informal caregivers of those with and without comorbid dementia.