Family-perceived usefulness of a pamphlet for families of imminently dying patients: a multicenter study
10.2512/jspm.7.192
- VernacularTitle:看取りの時期が近づいた患者の家族への説明に用いる『看取りのパンフレット』の有用性: 多施設研究
- Author:
Ryo Yamamoto
;
Hiroyuki Otani
;
Naoki Matsuo
;
Takuya Shinjo
;
Satsuki Uno
;
Hikaru Hirose
;
Tatsuhiro Matsubara
;
Chizuko Takigawa
;
Hiroshi Maeno
;
Kazuyoshi Sasaki
;
Yoshikazu Chinone
;
Masayuki Ikenaga
;
Tatsuya Morita
- Publication Type:Journal Article
- Keywords:
palliative care;
family care;
end-of-life care;
pamphlet
- From:Palliative Care Research
2012;7(2):192-201
- CountryJapan
- Language:Japanese
-
Abstract:
Purpose: To clarify the family-perceived usefulness of a pamphlet for families of imminently dying patients. Methods: Physicians and/or nurses provided medical and practical information about the dying process using a pamphlet for families of imminently dying patients. We surveyed family members 6 months after the death of the patient about the perceived usefulness. Results: We sent out a questionnaire to 325 bereaved, and obtained an answer from 260 (response rate: 85%). Overall, 81% reported the pamphlet to be “very useful” or “useful”. The experience reported by the bereaved included: “Helped me to understand the dying process” (84%); “Helped me to understand how symptoms and changes occur” (76%), “Useful in preparation for patient's death“ (75%), “Helped me to understand the physical conditions of the patient” (75%), “Helped me to know what I can do for the patient” (74%). Conclusion: “A pamphlet for families of imminently dying patients” may be useful for members of an imminently dying patient's family.
