Palliative care for cancer patients who experience self-perceived burden: suggestions from an qualitative study for bereaved family members
10.2512/jspm.7.142
- VernacularTitle:迷惑をかけてつらいと訴える終末期がん患者への緩和ケア─遺族への質的調査からの示唆
- Author:
Kazue Komura
;
Tatsuya Morita
;
Terukazu Akazawa
;
Makiko Sanjo
;
Satoru Tsuneto
;
Yasuo Shima
- Publication Type:Journal Article
- Keywords:
self-perceived burden;
cancer patients;
qualitative study
- From:Palliative Care Research
2012;7(1):142-148
- CountryJapan
- Language:Japanese
-
Abstract:
Cancer patients in terminal phase often feel self-perceived burden to their family and medical staff. The self-perceived burden should be alleviated, though needed care has not been fully investigated. This study aimed to investigate the self-perceived burden of terminal cancer patients and needed care. Semi-structured interviews were conducted for twenty-eight bereaved family members of cancer patients. The results revealed, 1) cancer patients' self-perceived burdens; including eight categories such as “It is distressful to have other people take care of my excretory needs”, 2) cancer patients' self-perceived behaviors to cope with their emotional burdens; including 11 categories such as “Telling the family to give higher priority to their work and plans”, 3) families' feelings and coping behaviors; including 15 categories such as “I thought of the patient's withholding of requests as a consideration for me“, and 4) care required for the patients' self-perceived burden; including nine categories such as “Speaking naturally instead of emphasizing something in particular”. The usefulness of care should be discussed.
