Ethical principles and practice guidelines concerning the usage of public database for medical researches.
10.5124/jkma.2013.56.11.1031
- Author:
Sang Ho YOO
1
;
Joongyub LEE
;
Kiheon LEE
;
Ilhak LEE
;
Jong Myon BAE
Author Information
1. Department of Medical Education, Hanyang University College of Medicine, Seoul, Korea.
- Publication Type:Practice Guideline ; Original Article
- Keywords:
Medical ethics;
Codes of ethics;
Practice guideline;
Database management systems;
Medical record linkage
- MeSH:
Codes of Ethics;
Database Management Systems;
Ethics, Medical;
Humans;
Medical Record Linkage
- From:Journal of the Korean Medical Association
2013;56(11):1031-1038
- CountryRepublic of Korea
- Language:Korean
-
Abstract:
In this paper, ethical principles and practice guidelines concerning the usage of public database for medical researches were developed and proposed. Although there are several personal health databases with comprehensive information of each individual, researches aiming at public good are often hindered because of legal, managerial and technical barriers to the usage of public databases. Ethical principles and guidelines are indispensible to promote medical research that will benefit society while protecting personal information from bleaching and abuse. These principles and guidelines should be a basis of trust and supports from society. For this purpose, the meaning of public good was given, and the current status of the linkage and usage of public databases were explored. As a result, three ethical principles-guaranteeing public good, protecting personal information, and transparency were established and eight recommendations were proposed.
