Factors Affecting Research Participation of Bereaved Families of Terminal Cancer Patients: A Prospective Preliminary Study.
10.14475/kjhpc.2016.19.3.233
- Author:
Ye Won KIM
1
;
Yuntaek LEE
;
In Cheol HWANG
;
Sun Wook HWANG
;
Hyo Min KIM
;
Jae Yong SHIM
;
Youn Seon CHOI
;
Yong Joo LEE
Author Information
1. Department of Family Medicine, Gachon University Gil Medical Center, Incheon, Korea. spfe0211@hanmail.net
- Publication Type:Multicenter Study ; Original Article
- Keywords:
Bereavement;
Neoplasms;
Hospice care;
Family;
Surveys and questionnaires
- MeSH:
Bereavement;
Caregivers;
Hospice Care;
Humans;
Logistic Models;
Observational Study;
Odds Ratio;
Prospective Studies*;
Surveys and Questionnaires
- From:Korean Journal of Hospice and Palliative Care
2016;19(3):233-239
- CountryRepublic of Korea
- Language:English
-
Abstract:
PURPOSE: Little is known regarding the factors associated with the willingness of family caregivers of terminal cancer patients to participate in a bereaved survey. This study aimed to ascertain the pre-loss factors that predict actual participation in a bereaved survey. METHODS: We conducted a prospective observational study using data from two multi-center surveys at the end-of-life and after loss. In order to identify the pre-loss factors associated with participating in the bereaved survey, we used a step-wise multivariate logistic regression analysis. RESULTS: Among 185 bereaved individuals, 30 responded to the survey (response rate: 16.2%). There were differences between the participation group and the non-participation group regarding religion, economic status, and perceived quality of care as assessed by the Quality Care Questionnaire-End of Life. A final multivariate model revealed that bereaved individuals who professed a religion (adjusted odds ratio [aOR]=5.01; P=0.008), had a high income (aOR=4.86, P=0.003), and satisfied with the care for familial relationship (aOR=4.49, P=0.003) were more likely to engage in the bereaved survey. CONCLUSION: Our finding suggests that improving the quality of end-of-life care may promote actual participation in a bereaved survey through easing post-loss distress. More attention should also be paid to those bereaved individuals who are hesitant to participate in a bereaved survey.
