Exploration into the needs and social work intervention of patients with Duchenne Muscular Dystrophy
10.12026/j.issn.1001-8565.2025.06.16
- VernacularTitle:DMD患者需求及社会工作介入探讨
- Author:
Yexiang MENG
1
;
Yu CUI
1
;
Wenjing WANG
1
;
Juan YAN
1
Author Information
1. School of Humanities and Social Sciences， Shanxi Medical University， Taiyuan 030001， China
- Publication Type:Journal Article
- Keywords:
Duchenne Muscular Dystrophy;
patient need;
social work;
social worker;
social service
- From:
Chinese Medical Ethics
2025;38(6):790-798
- CountryChina
- Language:Chinese
-
Abstract:
Duchenne Muscular Dystrophy （DMD） is an X-linked recessive inherited myopathy caused by a pathogenic variant of the amyotrophic protein gene. Currently， DMD patients have needs for treatment， education， and social integration at different stages of the disease. Faced with the multiple needs of DMD patients， based on the professional value and ethics of social work， the integrative orientation of social work， and the multiple roles of social workers， social workers can build a comprehensive service system centred on DMD patients and provide multiple services. Specifically， social work intervention paths can enhance the health and well-being of DMD patients and improve their quality of life by providing various services such as in-hospital and out-of-hospital health management， psychological support， resource links， empowerment， construction of social support networks， science popularization， and policy advocacy.
