Construction of a family-centered care program for children with tuberculosis based on the double ABC-X model and intervention effects evaluation
10.19428/j.cnki.sjpm.2025.24421
- VernacularTitle:基于双重ABC-X模式以家庭为中心的结核病患儿照护方案构建及干预效果评估
- Author:
Ning DONG
1
;
Lei SHEN
1
;
Yonghong TAO
1
;
Yuanhao WU
1
;
Xiaowen WEI
1
;
Lin ZHANG
1
Author Information
1. Shanghai Public Health Clinical Center, Shanghai 201508, China
- Publication Type:Journal Article
- Keywords:
tuberculosis;
children;
family-centered care;
medication adherence;
caregiver’s tending burden
- From:
Shanghai Journal of Preventive Medicine
2025;37(2):184-189
- CountryChina
- Language:Chinese
-
Abstract:
ObjectiveTo construct a family-centered care model for children with tuberculosis based on the double ABC-X model, and to evaluate its clinical effects. MethodsFrom December 2022 to October 2023, 64 newly admitted children with tuberculosis who met the criteria and their caregivers were recruited from the tuberculosis department of Shanghai Public Health Clinical Center were randomly divided into an experimental group (32 cases) and a control group (32 cases).The control group was given a conventional health care, while the experimental group was given a family-centered health care intervention based on the double ABC-X model, in which a multidisciplinary care team provided personalized information and emotional support for the caregivers and their children. Medication adherence of the children, caregiver’s teading burden, and disease management competence were compared between the 2 groups. ResultsA total of 29 cases in the experimental group and 27 cases in the control group completed the intervention. At 12 weeks of intervention, the medication adherence score (7.72±0.45 vs 7.41±0.50, P<0.05) and disease management competence score (36.97±7.85 vs 31.56±7.30, P<0.05) were higher in the experimental group than that in the control group while the caregiving burden score (31.79±13.40 vs 40.04±9.01, P<0.05) and difficulty of disease management score (30.41±12.41 vs 38.56±9.48, P<0.05) were lower than that in the control group. At 24 weeks of intervention, the medication adherence score (7.34±0.97 vs 6.70±1.14, P<0.05) and disease management competence score (42.07±6.93 vs 35.63±7.32, P<0.05) were higher in the experimental group than that in the control group as well, but the caregiving burden score (31.62±11.72 vs 39.63±10.17, P<0.05) and difficulty of disease management score (30.59±10.87 vs 37.81±9.32, P<0.05) were lower than that in the control group. ConclusionFamily-centered care based on the double ABC-X model can effectively promote medication adherence among children with tuberculosis, reduce caregivers’ care burden and disease management difficulties, and improve caregiver’s disease management competence.
