Medical decision-making in children with autism spectrum disorder from the perspective of caregivers: a systematic analysis
10.3760/cma.j.cn115624-20240823-00675
- VernacularTitle:照顾者视角下孤独症谱系障碍患儿就医决策的系统分析
- Author:
Wenhui LI
1
;
Yi LI
;
Xu BAOZHU
;
Yan HUO
;
Yuefeng LI
;
Shuangshuang YE
;
Yu WANG
Author Information
1. 厦门大学附属翔安医院健康管理中心，厦门 361102
- Keywords:
Autism spectrum disorder;
Caregiver;
Medical decision-making;
Qualitative research;
Meta-analysis
- From:
Chinese Journal of Health Management
2024;18(12):924-931
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To systematically review the medical decision-making for children with autism spectrum disorder (ASD) from the perspective of caregivers.Methods:It was a systematic review. Using search terms as “Autism”“loneliness disorder”“autism spectrum disorder”“parents”“caregiver”“medical decision making”, etc., qualitative studies on medical decision-making of ASD caregivers in the databases of PubMed, Web of Science, Cochrane Library, Embase, Scopus, CNKI.com, Wanfang Database, VIP database, and Chinese Biomedical Literature database were searched. The search was conducted from the inception of the databases to July 31, 2022, and the data was organized from August 1 to September 1, 2022. The literature quality was evaluated by two researchers according to the quality evaluation criteria for qualitative research at the Centre for Evidence-based Health Care, Joanna Briggs Institute, Australia. Pooled integration method was used to integrate the study results and evaluate the medical decision-making of children with ASD from the perspective of caregivers.Results:Seventeen studies were included, with two studies rated as quality grade A and fifteen studies rated as quality grade B. A total of 36 research findings were extracted. These findings were grouped into ten new categories based on similarities, which were further synthesized into three overarching results: the symptom-driven medical decision-making process, delays in medical decision-making due to individual, family, and societal factors, and the influence of personal experiences and multiple external pressures on medical decision-making.Conclusion:The factors that lead to the delay or promotion of medical decision of caregivers of children with ASD are complicated, and comprehensive intervention measures should be taken at individual, family and social levels to promote early medical diagnosis and intervention of the children with ASD.
