Rescue and nursing care of a neonate with severe laryngomalacia complicated with breath-holding attack
10.3761/j.issn.0254-1769.2024.07.014
- VernacularTitle:1例重度喉软骨软化病合并屏气发作新生儿的急救与护理
- Author:
Shangqing CUI
1
;
Hongqing GUO
;
Jinhua WU
;
Qiugui HUO
Author Information
1. 215000 苏州市苏州大学附属儿童医院新生儿重症监护室
- Keywords:
Rare Diseases;
Laryngomalacia;
Breath Holding;
Gene;
Mutation;
Neonatal Nursing
- From:
Chinese Journal of Nursing
2024;59(7):859-864
- CountryChina
- Language:Chinese
-
Abstract:
To summarize the rescue and care of a case of breath-holding attack caused by congenital contractures of limbs and face,hypotonia,and developmental delay(CLIFAHDD)syndrome.Key points of nursing:early identification and intervention of breath-holding attack in CLIFAHDD syndrome,and implementation of rapid reactive rescue;implementing individualized developmental care measures to avoid stimuli that induce breath-holding attack;paying attention to the assessment of oral feeding ability,strengthening the exercise of oral feeding ability and nutrition management;strengthening perioperative diversified airway management to prevent postoperative complications;the monitoring of early neurological and motor system development,and early start of rehabilitation care;doing a good job in health education for caregivers to help them master the first aid treatment and growth and development assessment methods in the event of a breath-holding attack.After 53 days of hospitalization,the patient was discharged.After being discharged from the hospital for more than 1 month,the patient had breath-holding attack 2～4 times a day.After being discharged from the hospital for more than 2 months,the patient had no breath-holding attack,and only had occasional convulsive seizures during sleep,which could be relieved spontaneously.
