Journey map of chronic constipation patients undergoing fecal microbiota transplantation
10.3760/cma.j.cn115682-20240312-01268
- VernacularTitle:行肠道菌群移植治疗的慢性便秘患者旅程地图
- Author:
Haihan LI
1
;
Shufan CHEN
;
Keyu LING
;
Shailan ZHOU
;
Zining GUO
;
Ling XU
;
Sining ZENG
;
Xiaoping ZHU
Author Information
1. 同济大学医学院,上海 200092
- Keywords:
Constipation;
Microbiota transplantation;
Journey map;
Qualitative research
- From:
Chinese Journal of Modern Nursing
2024;30(34):4662-4669
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To explore the journey map of patients with chronic constipation during fecal microbiota transplantation.Methods:This study adopted phenomenological methods. From October to December 2023, purposive sampling was used to select chronic constipation follow-up patients who underwent fecal microbiota transplantation at the Intestinal Microecology Center of Shanghai Tenth People's Hospital as respondents for semi-structured interviews. Colaizzi 7-step analysis method and NVivo 11.0 software were used for data analysis.Results:A total of 15 interviewees were interviewed. During fecal microbiota transplantation, the journey map of constipation patients included stages, mood changes, touchpoints, themes, emotional experiences and opportunities. The patient's experience and needs were summarized into three themes and ten sub-themes, including pre-transplant adaptation disorders to new environments (unfamiliarity and confusion-admission coordination disorders, anxiety and expectations-diverse complex emotions, puzzle and helplessness-asymmetric doctor and patient information), effectiveness-related psychological and social experiences in transplantation (attention and expectations-longing for positive efficacy, perception of benefits and risk avoidance, shame and inferiority-treatment stigmatization experience, questioning and despair-unrealized expectations, treatment resistance-sensitive economic burden), post-transplant transition dilemmas (inaccessible medical services-lack of continuous treatment and nursing, disease recurrence troubles) .Conclusions:This study visualizes the experiences and needs of constipation patients during microbiota transplantation through a patient journey map and identifies multidimensional issues and needs of patients. Clinical medical and nursing staff should pay attention to the needs of patients at different stages of the treatment process when formulating intervention programs to improve the quality of fecal microbiota transplantation nursing.