Qualitative research on caregiving feelings and needs of caregivers of children with β-thalassemia major
10.3760/cma.j.cn115682-20230627-02531
- VernacularTitle:重型β-地中海贫血患儿照顾者照护感受与需求的质性研究
- Author:
Xiufen SHANG
1
;
Yicheng BAN
;
Qingmei LU
;
Yingxin LIU
;
Ying LIANG
;
Hongxing YE
;
Xiupin HUANG
Author Information
1. 右江民族医学院研究生学院，百色 533000
- Keywords:
Anemia;
β-thalassemia major;
Caregivers;
Caregiving feeling;
Needs;
Qualitative research
- From:
Chinese Journal of Modern Nursing
2024;30(14):1928-1932
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To explore the caregiving feelings and needs of caregivers of children with β-thalassemia major.Methods:A semi-structured interview was conducted with 14 caregivers of children with β-thalassemia major who were treated at the Affiliated Hospital of Youjiang Medical University for Nationalities from December 2022 to March 2023, and the data were analyzed using the Colaizzi 7-step analysis method.Results:Caregivers of children with β-thalassemia major felt a greater burden of care, including declining physical and mental health, disruption of daily life rhythms and heavy financial burden. And their caregiving needs included psychological and emotional support, guidance on the physical and mental health of children, assurance of a stable blood supply and medical and social support.Conclusions:Caregivers of children with β-thalassemia major have a heavy burden of care and face various nursing difficulties in the daily care of children. Medical staff should actively take measures to meet their care needs and improve their care quality and quality of life.
