Care experience of family caregivers for patients with amyotrophic lateral sclerosis: a Meta-synthesis of qualitative research
10.3760/cma.j.cn115682-20231101-01808
- VernacularTitle:肌萎缩侧索硬化症患者家庭照顾者照顾体验质性研究的Meta整合
- Author:
Kaili LYU
1
;
Yan SUN
;
Jie SONG
;
Jie SUN
;
Kexin PU
;
Ziheng JIN
Author Information
1. 山东中医药大学护理学院，济南 250355
- Keywords:
Amyotrophic lateral sclerosis;
Caregiver;
Care experience;
Qualitative research;
Meta-synthesis
- From:
Chinese Journal of Modern Nursing
2024;30(11):1443-1449
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To systematically evaluate the care experience of family caregivers for amyotrophic lateral sclerosis (ALS) patients, providing guidance for home care of ALS patients.Methods:Qualitative studies on the care experience of family caregivers for ALS patients were retrieved from PubMed, American Psychological Association Psychnet, CINAHL, Web of Science, Medline, Cochrane Library, Embase, China Biology Medicine disc, WanFang Data, VIP, and China National Knowledge Infrastructure. The search period was from database establishment to October 30, 2022. The quality of literature was evaluated using the quality evaluation criteria for qualitative research of the Australia Joanna Briggs Institute Evidence-Based Health Care Center (2016 edition). The aggregative integration method was used to integrate the results using NVivo 11 software.Results:A total of 11 studies were included. A total of 22 complete and clear results were extracted and combined to form eight new categories, which were integrated into three results, namely, family caregivers facing personal development limitations and various family difficulties, experiencing complex and chaotic emotional experiences, and craving for diversified care support.Conclusions:Nursing staff should pay attention to the impact of ALS on their patient's family caregivers, provide caregiver knowledge and skill guidance, promote positive emotional experiences, and offer diversified care support to improve the quality of life of patients and family caregivers.
