Cognition and participation intention of patient-reported outcomes in patients with lower limb deep vein thrombosis: a qualitative study
10.3760/cma.j.cn115682-20230713-00029
- VernacularTitle:下肢深静脉血栓患者对患者报告结局认知和参与意愿的质性研究
- Author:
Ranxun AN
1
;
Yuan XU
;
Lei WANG
;
Yu WANG
;
Haibo DENG
;
Jianhua SUN
;
Xiaojie WANG
;
Liyun ZHU
;
Qiaodan LU
;
Xinyi ZHOU
;
Yufen MA
Author Information
1. 中国医学科学院北京协和医学院北京协和医院护理部，北京 100730
- Keywords:
Deep vein thrombosis;
Patient-reported outcomes;
Participation intention;
Qualitative study
- From:
Chinese Journal of Modern Nursing
2024;30(1):95-100
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To explore the cognition and intention of patients with lower limb deep vein thrombosis (DVT) to participate in patient-reported outcomes (PROs), so as to provide references for the promotion, application, and practice of PROs in lower limb DVT patients in China.Methods:This study adopted the phenomenological qualitative research method. From February to June 2023, 13 lower limb DVT patients admitted to Peking Union Medical College Hospital were selected for semi-structured in-depth interviews. Colaizzi 7-step analysis method was used for analyzing and summarizing data.Results:Thirteen patients with lower limb DVT highly recognized their own value in participating in PROs, namely health benefits, prevention of DVT complications, and reduction of disease uncertainty. Lower limb DVT patients expected to receive support from healthcare professionals, families, and portable and simplified reporting formats to promote their participation in PROs. From the patient 's own perspective, they perceived that insufficient attention to DVT caused by lack of awareness of the hazards of DVT and limited understanding of PROs made it difficult for them to participate in PROs. Conclusions:Lower limb DVT patients have a high intention to participate in PROs. The application and promotion of PROs in lower limb DVT patients in China require joint support from various sectors of society, among which strengthening effective health education for patients and their families and providing multi-channel reporting forms are the key to promoting of PROs.
