Current status and influencing factors of health-related quality of life in children with epilepsy
10.3760/cma.j.cn115682-20230310-00911
- VernacularTitle:癫痫儿童健康相关生活质量的现状及影响因素研究
- Author:
Jie YANG
1
;
Aiqiu LI
;
Ping TANG
;
Yinjie LIU
;
Liling YANG
Author Information
1. 上海市儿童医院/上海交通大学医学院附属儿童医院神经内科，上海 200040
- Keywords:
Epilepsy;
Children;
Quality of life;
Social support;
Current status;
Influencing factors
- From:
Chinese Journal of Modern Nursing
2023;29(35):4855-4860
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To investigate the current status of health-related quality of life (HRQoL) in children with epilepsy using the Quality of Life in Childhood Epilepsy Questionnaire (QOLCE-16) and identify its influencing factors.Methods:Totally 289 epileptic children and their parents who visited the epilepsy center of Shanghai Children's Hospital from May 2021 to April 2022 were selected for the study by convenience sampling. Data were collected using general information surveys, epilepsy knowledge questionnaires, Social Support Rating Scale (SSRS) , and the QOLCE-16. A stepwise linear regression was performed to analyze the factors influencing the HRQoL of children with epilepsy. Out of 289 questionnaires distributed, 261 valid responses were received, yielding a valid response rate of 90.31% (261/289) .Results:The QOLCE-16 score for the 261 children with epilepsy was (71.05±14.04) . Stepwise linear regression revealed that single-parent family, presence of comorbidities, utilization of social support, and the accuracy rate of the epilepsy knowledge questionnaire were influencing factors for HRQoL in children with epilepsy.Conclusions:The HRQoL in children with epilepsy requires further enhancement. Clinical nursing processes should pay attention to the child's family situation, alleviate negative emotions, encourage active treatment cooperation, assist in social interaction, and provide family-centered health education to improve the quality of life for children with epilepsy.
