A qualitative study on disease management experience of adolescent atopic dermatitis patients during school
10.3760/cma.j.cn115682-20230212-00451
- VernacularTitle:青少年特应性皮炎患者在校期间疾病管理体验的质性研究
- Author:
Xueyu HE
1
;
Jiaqi LIU
;
Ke XU
Author Information
1. 南方医科大学皮肤病医院皮肤科，广州 510095
- Keywords:
Adolescents;
Atopic dermatitis;
Self-management;
School;
Qualitative study
- From:
Chinese Journal of Modern Nursing
2023;29(32):4378-4383
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To gain a deeper understanding of the disease management experience of adolescent atopic dermatitis (AD) patients during their school years.Methods:This is a qualitative study. Using the purposive sampling method, a total of 17 adolescent AD inpatients admitted to Dermatology Department of Dermatology Hospital of Southern Medical University were selected as the research objects from January to November 2022, and a semi-structured interview was conducted. According to the Colaizzi 7-step method, the interview content was sorted out and analyzed.Results:The disease management experience of adolescent AD patients during their school years mainly included the effect of diseases on their learning and life (lack of concentration in learning, sleep disorders, appearance anxiety and negative social interaction) , conflicts in disease management and response (skin moisturizing care and spatiotemporal conflicts, skin lesion attacks and sports conflicts, follow-up visits and class conflicts) and insufficient demand support (insufficient sources of professional knowledge guidance, insufficient understanding of diseases by teachers and lack of supervision and guidance for long-term treatment) .Conclusions:Adolescent AD patients are plagued by repeated attacks of the disease and lack of good management methods and insufficient school social support. Medical staff should popularize disease knowledge for patients, their parents and school teachers, guide standardized disease management methods, solve the disease management difficulties of adolescent AD patients during school and improve the disease management ability of patients.
