Meta-synthesis of qualitative researches on symptom burden and psychological experience in patients with myasthenia gravis
10.3760/cma.j.cn115682-20230331-01253
- VernacularTitle:重症肌无力患者症状负担及心理体验质性研究的Meta整合
- Author:
Yanchun LIANG
1
;
Jihong CAI
Author Information
1. 首都医科大学附属北京天坛医院神经病学中心神经感染与免疫科，北京 100070
- Keywords:
Myasthenia gravis;
Symptom burden;
Psychological experience;
Qualitative research;
Meta-synthesis
- From:
Chinese Journal of Modern Nursing
2023;29(27):3662-3669
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To systematically evaluate the qualitative researches on symptom burden and psychological experience of patients with myasthenia gravis, so as to provide references for improving the support system of this population and promoting their physical and mental health.Methods:Qualitative researches on symptom burden and psychological experience in patients with myasthenia gravis were searched on PubMed, Web of Science, Embase, Cochrane Library, PsycINFO, CINAHL, Scopus, Proquest, Ovid, Wiley Online Library, Springer Link, China National Knowledge Infrastructure, VIP, Wanfang Dadabase and China Biology Medicine disc. The search period was from the establishment of the database to December 31, 2022. The quality evaluation criteria of Evidence-Based Health Care Center of Joanna Briggs Research Institute (JBI) in Australia was used to evaluate the quality of the literature, and the Meta-synthesis of the literature was performed using the pooled integration method.Results:A total of 8 studies were included, 66 study results were extracted, 10 new categories were summarized, and 4 integrated results were synthesized, including patients with myasthenia gravis suffering from physical symptoms leading to mental fatigue and cognitive impairment, effects of myasthenia gravis on physical, social, psychological functions and work in patients, difficulties and challenges encountered in the course of treatment and attitude , behavior change, responsibility and mission assumption and personal growth achievement.Conclusions:Patients with myasthenia gravis have serious symptom burden and psychological distress. Clinical nursing staff should attach importance to patient symptom management, pay attention to their physical and mental feelings, provide multi-dimensional social support, help patients actively face disease challenges and achieve personal growth.
