Construction of Patient Version of Guideline for Ketogenic Diet Therapy in Children with Refractory Epilepsy
10.3760/cma.j.cn115682-20220915-04537
- VernacularTitle:《儿童难治性癫痫生酮饮食治疗患者指南》的构建
- Author:
Jiaxin FANG
1
;
Zhiyu LONG
;
Dan YANG
;
Xiaoyan ZHANG
;
Xuejing LI
;
Dahua ZHANG
Author Information
1. 北京中医药大学中医学院，北京 102488
- Keywords:
Child;
Patient version of guidelines;
Refractory epilepsy;
Ketogenic diet
- From:
Chinese Journal of Modern Nursing
2023;29(24):3301-3307
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To construct the Patient Version of Guideline for Ketogenic Diet Therapy in Children with Refractory Epilepsy. Methods:This guideline was based on the theoretical framework of A Guideline Adaptation and Implementation Planning Resource (CAN-IMPLEMENT) and patient-oriented knowledge tools, forming the research roadmap. The Patient Version of Guideline for Ketogenic Diet Therapy in Children with Refractory Epilepsy was constructed by clarifying research questions, evidence integration, guideline formation and other normative steps. Results:A total of 17 research questions on ketogenic diet therapy in children with refractory epilepsy were formed. A total of 11 papers were included, including 4 guidelines and 7 consensuses. The final patient version of guideline included 4 themes, involving assessment, pre-implementation preparation, implementation and monitoring, follow-up, evaluation and termination, and 29 recommended items.Conclusions:The patient version of guideline constructed in this study is based on a scientific construction framework and method, and fully considers the needs of patients, which can provide a reference for the management of ketogenic diet therapy in children with refractory epilepsy.
