Care experience of main caregivers of children with juvenile onset recurrent respiratory papillomatosis: a qualitative research
10.3760/cma.j.cn115682-20220827-04194
- VernacularTitle:幼年型复发性呼吸道乳头状瘤患儿主要照顾者照顾体验的质性研究
- Author:
Xiaobo REN
1
;
Jing LIANG
;
Yang XIAO
;
Ying YANG
;
Tianbao SUN
;
Meng SUN
Author Information
1. 首都医科大学附属北京同仁医院耳鼻咽喉头颈外科，北京 100730
- Keywords:
Neoplasms;
Recurrent respiratory papillomatosis;
Child;
Caregivers;
Care experience;
Qualitative research
- From:
Chinese Journal of Modern Nursing
2023;29(23):3150-3154
- CountryChina
- Language:Chinese
-
Abstract:
Objective:To explore the care experience of the main caregivers of children with juvenile onset recurrent respiratory papillomatosis.Methods:From March to November 2021, the main caregivers of 11 children with juvenile onset recurrent respiratory papillomatosis hospitalized in the Otolaryngology Head and Neck Surgery of Beijing Tongren Hospital, Capital Medical University were selected as the study subjects by objective sampling. Guided by the phenomenology method in qualitative research, in-depth interviews were conducted with the study subjects through the semi-structured interview outline. We used the Colaizzi 7-step analysis method to analyze data and extract themes.Results:A total of 5 themes were proposed, namely, excessive psychological stress, heavy economic burden, heavy care burden, adaptation to challenges and role growth, hope for social supports.Conclusions:The main caregivers of children with juvenile onset recurrent respiratory papillomatosis bear all kinds of stress in the process of caring for children, and they have grown up and hope to get social supports. Medical and nursing staff and society should provide great supports and attention to this group, in order to improve the quality of care for children by caregivers.
